A BILL TO BE ENTITLED
AN ACT requiring that new conditions listed on the recommended uniform screening panel (rusp) be added to north carolina's newborn screening program within two years after being added to the rusp.
The General Assembly of North Carolina enacts:
SECTION 1.  G.S. 130A‑125(b) reads as rewritten:
"(b)	The Commission shall adopt rules necessary to implement the Newborn Screening Program. The rules shall include, but shall not be limited to, the conditions for which screening is required. The Commission shall amend the rules as necessary to ensure that each condition listed on the Recommended Uniform Screening Panel developed by the Secretary of the United States Department of Health and Human Services and the Advisory Committee on Heritable Disorders of Newborns and Children (the RUSP) is included in the Newborn Screening Program within two years after being added to the RUSP, except that the Commission is exempt from rule making with respect to adding screening tests for Pompe disease, Mucopolysaccharidosis Type I (MPS I), and X‑Linked Adrenoleukodystrophy (X‑ALD). Screening is not required when the parents or the guardian of the infant object to such screening. If the parents or guardian object to the screening, the objection shall be presented in writing to the physician or other person responsible for administering the test, who shall place the written objection in the infant's medical record."
SECTION 2.  This act becomes effective January 1, 2022.